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Crohn’s Disease and Ulcerative Colitis Awareness Week December 1-7

Crohn’s Disease and Ulcerative Colitis Awareness Week December 1-7

December 1-7 is one week out of the year that is designated to Crohn’s and Colitis Awareness. So, as a voice for building awareness and being an advocate for myself and patients battling this debilitating disease, I wanted to share with you a few facts about these diseases. I know this is not crochet related, but the reason I started crochet was to help cope with my illness and also help pass the time in the hospital when I would be in for months at a time.

Crohn’s disease is a form of inflammatory bowel disease (IBD). It affects the entire gastrointestinal tract and can affect anywhere from the mouth to the anus.

Ulcerative colitis affects the large intestine/colon, and rectum. Symptoms include Inflammation and ulcers, diarrhea, internal bleeding, fatigue, fevers, abdominal pain and cramping, reduced appetite leading to significant weight loss. Complications from this disease and sometimes treatments can be life threatening!

THERE IS NO CURE.

 

Oftentimes serious drugs like chemotherapies and biologics are needed and/or drastic surgeries are necessary to stave off the progression of the disease. Most people who suffer from these diseases can appear “normal” or “healthy” from their outward appearance, but are silently suffering from the inside. Many are among our friends, family, co-workers, community members – millions of people worldwide have some form of IBD!!!!

It is an invisible illness that oftentimes is not discussed in everyday company. Unless you know ME or someone who has Crohn’s disease or ulcerative colitis you may have never heard of these before.

 

Have questions? Want to learn more? Ask me anything-I am an open book when trying to educate about this topic. One thing over the years I have learned is there is no shame battling illness and the stigma surrounding it. I may not look it, but I am battling this disease Every. Single. Day. It affects nearly every aspect of my life. I am not alone. I have so many friends suffering!! I am devastated to say people were lost by complications of this disease.

If we can educate just one person through our journey, through disease, then our suffering is not in vain and there is some purpose in all we have gone through and continue to face. Please, Please take time to learn more this week (and beyond) and understand how devastating Crohn’s disease and ulcerative colitis really is.

Crohn’s disease has impacted every aspect of my life including School, Employment, Relationships (Romantic or Familial), Socially, Financially, and Emotionally.

You can find more information about these inflammatory bowel diseases at CCFA.org

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No Colon, Still Rollin’: World IBD Day

No Colon, Still Rollin’: World IBD Day

**Sensitive Content**

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If I could crochet a colon for myself and anyone else who has lost their intestines due to Crohn’s disease or ulcerative colitis, I would. If only it was that easy. I would stitch until my fingers fell off!! Unfortunately, I would have to crochet for millions of people who sadly have had total proctocolectomy surgery due to the devastation of inflammatory bowel disease. Today, May 19th, is World IBD Day. It is a day to recognize the millions of people worldwide who suffer from these debilitating diseases.

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I crocheted this colon (large intestine) as a symbol of loss. Crohn’s disease claimed my large intestine in 2008, only one week before my 18th birthday. On the very cusp of colon cancer, my disease was extremely progressive and surgery was my only option. The fight never ends because sadly, there is no cure. Ulcerative colitis and Crohn’s disease are the most common types of inflammatory bowel disease. Ulcerative colitis affects only the colon and rectum. Crohn’s disease can affect any part of the digestive tract from mouth to anus.
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This colon represents each major surgery; each stitch stands for each procedure, x-ray, scan, or test that I have undergone. This may seem like an unusual analogy to represent an organ or diseases that most people rarely, if ever, think about. To me, this disease changed my entire life and those changes led me here, crocheting my very own colon, and using my voice and skills to advocate for others who don’t have a platform to help spread awareness. Many of whom are no longer with us. Our diseases may appear invisible, but we are not!

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Silly, strange, serious, or an obnoxiously bold statement, however you view this piece I created, hopefully it will generate conversation for inflammatory bowel diseases. Not just on May 19th, World IBD Day, but every day of every year until we find a cure.

Please *share* this blog post and you may be surprised to find how many people YOU know are silently suffering. There is NO CURE. Help raise more awareness so that I never have to type those words again.

To learn more please visit ccfa.org

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Thank you!
~Nadia

(Some of the photos used in this blog post were found on Google.com Image Search)


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