Life is Changing

Life is Changing

It’s been quite a while since I have last written an update both regarding my health and also Nasir’s diagnosis of autism. As far as my health goes, I feel I’m in the best place I have been in years. I have occasional setbacks, but over-all I have been feeling very good. I’ve been following up with doctors, continuing my biologic medication, and trying to practice a healthier lifestyle. I have been going to the fitness center several days a week. The gym is two-fold. One, for my physical and mental health, and secondly for Nasir. He is socializing with his peers more and more, and the gym’s childcare services provide an opportunity for him to do just that.

Where we started

Since I last blogged about this, we were in the middle of a whirlwind of overwhelming hits coming at us from every direction. Nas wasn’t meeting his appropriate age mile markers. I was battling my own health issues with my Crohn’s disease and mental health, the most difficult being post-partum depression and anxiety. You can read more here.

Soon after the doctors told us Nasir was on the Autism Spectrum, we were thrust into a new normal of therapies of all kinds. Speech, behavioral, occupational, and more. Nasir was nearly two years old and other than making some babble sounds, he didn’t say actual words, mimic our sounds, answer or respond to his name, he wouldn’t make eye contact often, he played independently from other children (other kids didn’t interest him much), he obsessively watched or paid attention to only certain things like specific TV shows that he watched over and over. We would discount or rationalize them, or chalk it up to other things – “maybe it’s his hearing” or “he was born a little early, he’s just a little delayed.”

What came next

Getting the diagnosis of ASD was bittersweet for our family. It’s one of the most overwhelming things to process, but we also have a solid reason for the why’s we were experiencing. We could finally move forward with all the wonderful resources our community has to offer.

Where we are now

Nasir is in therapy nearly every day. He is now talking non-stop. He has lots to talk about and share. He has big opinions and now that he has discovered his voice, he is eager to discover new words, things and experiences. He loves adventure, to play, and to build. He swims and loves the park. He has friends and learns a lot from parallel play. He recently started dancing and his love of music has always been strong. Magna-tiles have opened up his imagination, and he is a master at building castles. He sings, counts, says the alphabet, and identifies so many objects we see throughout the day. He loves his family. Mama and Daddy are his favorite people followed by his grandparents, all his aunties, uncles, cousins and his amazing therapists. He loves reading books, and presently, The Mickey Mouse Clubhouse is his favorite TV show. (We shout “OH TOODLES” a dozen times a day!)

We have come SO FAR in a just under a year. The therapies have provided Nate and I small windows in our day to have a break. Despite Nasir’s achievements, he is still demonstrating behavior that do not allow us many moments for breaks. He’s still a wild toddler, of course, but he also never sits still, his attention span is very short. We are having less meltdowns, but they still occur daily. My entire life is devoted to this sweet boy and facing all the challenges that come our way.

Moving ahead

When I do get a chance, I’m trying to get back into my crochet. I feel that spark coming back. I feel several sparks returning. I’m beginning to feel more like myself. Therapy has helped – my own therapy. It’s been life-changing. Little by little, I have been able to piece myself back together. I’m stronger than I have been in a long time. I can do hard things, and I’m doing them every day. If Nas is doing hard things, then I need to continue to set an example and do the same. We continue to take baby steps toward doing more crochet projects and hopefully soon, things will be back into full-swing.

I am currently working on one crochet project per month, and I have a goal of doing 3 to 4 projects per month like I used to do. At the time of creating this blog post, I am anticipating planning out our Halloween costumes for the family this year. You know we have to go all out like every year! Can’t wait to share what we have up our sleeve in 2022!


Here are some fun pictures we took this summer!





13 responses

    • It’s hard when meltdowns are a regular occurrence. My brother and sister-in-law experienced the same thing after their son was diagnosed as autistic. This summer he graduated from high school. He has talent for public speaking and cooking. He is a wonderful young man.

      Someday Nasir will finish school and you will be very proud of him. These early years are exhausting and stressful but you are not alone.

  1. You are an inspiration to me as a mother, wife,woman and fellow crocheter.. thank you for sharing your life and passion fir crochet with us all. We need more connection with each other as humans in this crazy and also wonderful world.
    Peace and strength be with you, sister.

    Much love,

  2. Fantastic!!! Just keep on doing what you are doing, and keep a positive attitude as much as you can, it helps. Nas is a beautiful boy with beautiful, loving parents and he is very lucky. You take care of You and the family. Family always comes first, we all understand that. May God bless you all <3

  3. I congratulate you and your husband. Family should be our priority above everything else. What a joy that you have been able to achieve so much in such a short time, the faster he gets the necessary care the better, because you will be able to achieve more. A hug and I hope everything continue to improve. Your child needs you and one day he will thank both of you.Thanks for sharing with us, he is so a beautiful boy!

    • So glad to hear things are improving. While you certainly are missed, family has to come first. My daughter and 15 month old granddaughter live with me and “Oh Toodles!” Is frequently heard around here too! Glad to see you’re easing back into crochet content. 💕💕

    • Dear Nadia, you are such a beautiful person, inside and out. I admire you very much and have loads of respect for you. You are doing an awesome job as a mother and wife, and you’re an excellent example of “Defiance in the face of adversity”. May we all be just as strong, selfless and brave as you are in the face of what life throws at us.
      May God bless you and yours. Much love and hugs coming your way xxxxx Cath

  4. So glad to hear that you’re little man is doing is well with therapy. All the best to you all. 😊

  5. So happy to hear things are going well for you and your little man. It sounds like he’s doing great! I’m also loving your hair! Beautiful!

  6. You are looking very beautiful ! Your little boy is adorable! May things continue to evolve in a very positive way

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